So, this is the first new blog of my old blog. Are you still with me? Good. First a few household messages: 1, I’ve stopped any kind of treatment and I feel “good”. Of course I still have bad moments, on the contrary, I often feel really Ill, but not nearly as much as I did when I was in treatment. The constant hospital visits, split into two hospitals, one near my hometown, one way up in the north. It was getting too much!. Also the long term stays, all because of that experimental treatment…I simply had enough of it. Was it wise? Probably not, but ill or not, I have a life and I want to live it.
Yesterday I had the pleasure of meeting up with my friend Maia and her friend Grace. They are stating their European trip (both being US Citizens). I love it that Mia always plans in a bit of time for me. She is possibly the sweetest girl I know, not many would cramb you in a very tight schedule and giving you the possibility for making a new friend, Grace. Usually I worry when Mia travels alone, but now that she is traveling with her old time friend, Grace I’m feeling much more at ease. Mia gave me a self knitted hat and it’s by far one of the best things I ever got. Very authentic. Mom wanted to alter it a bit, so it doesn’t fall apart. I gave her permission as long If she kept the hole in it that was a bit of a woopsy. Like I said, it’s authentic, it’s handwork and above all, it was made with love and I absolutely love it. I gave Mia a Dutch version of Harry Potter and the philosopher’s stone and Grace a Dutch version of maze runner. This was a bit of a gamble, but it payed out, Grace loved it.
When they got on their way I made my way back home. It was a short visit, but in those 90 I saw one of my all time best friend’s and made a new one in that process.
All in all this Sunday was a good one. This week I’m up for a hospital visit, spinal puncture. Also soon a CT scan coming up (they want to monitor Bobby and Rufus, my to largest tumours) and I want a reconstruction of my inner plumbing, meaning the removal of my stoma. Keeping you in a loop.